The legislator explained that it is a genetic disorder that results in the formation of fragile bones that break easily, and the idea is to show the various special difficulties that sufferers with this disease suffer from.
In addition, on her initiative, the member of the PRI parliamentary group exposed the conditions of social exclusion and the obstacles faced by people with disabilities.
That is why, with your proposal, what you intend to give way for that day to reflect, that history present us with outstanding challenges and allow us to measure progress incrementally.
He explained that the disease in Mexico is not known, and according to the civic association “U Tambiin”, it is classified under the group of rare or low-prevalence diseases.
He determined that 1 in 20,000 births has this condition and that 1 in 55,000 people suffer from the most severe form of osteogenesis deficiency.
The PRI legislator explained that patients with less severe disease generally survive, but they do have fractures in their long bones, and most fractures occur between the ages of two and three years, and again, during puberty, between the ages of ten and fifteen.
Aceves Garcia noted that although there are no official figures, it is estimated that there are seven thousand people with imperfect osteogenesis in Mexico.
However, he warned that the Mexican state is far behind in this issue, compared to countries in the Caribbean and Central and South America, such as Cuba and Chile, which through civil associations promote full inclusion and access to their rights. imperfect.
The initiative was handed over to the House Governance and Population Committee.
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